エピソード

  • 172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD
    2025/05/19

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live.

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    12 分
  • 171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis
    2025/05/15

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis.

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    16 分
  • 170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.

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    12 分
  • 169: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.

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    14 分
  • 170: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.

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    14 分
  • 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
    2025/04/30

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).

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    13 分
  • 167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research
    2025/04/28

    Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.

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    13 分
  • 166: An Interview With MDA 2025 Patient Ambassador Lily Sander
    2025/04/15

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.

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    15 分