Rare Care Podcast

著者： Rare Care Podcast
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  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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あらすじ・解説

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
科学 衛生・健康的な生活
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エピソード
  • 154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute

    154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute
    2025/01/24

    Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.
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    13 分
  • 153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain

    153: An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain
    2025/01/17

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Terry Jo Bichell, PhD, founder and director of CombinedBrain, which advocates for patients with 110 neurogenetic diseases. Dr. Bichell is part of a panel that's studying how the US Food and Drug Administration can do a better job of speeding up clinical trials and becoming more transparent about its decisions.
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    16 分
  • 152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation

    152: An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation
    2025/01/06

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Erin Collins, founder of the Chasing Rainbows Foundation in North Carolina's Outer Banks. The charity raises awareness of HDFN and other rare pregnancy-related diseases.
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    15 分
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