In this episode, we are joined by Angela Gibbons, patient advocate, research partner and founder of The HS Support Network UK and Ireland.

We explore her journey of multiple chronic illnesses and how she went from "not telling a soul" to gradually seeking opportunities for change.

Today, Angela is involved in numerous national and international projects and has set up a charity supporting those with the often overlooked and misunderstood condition of hidradenitis suppurativa.

Like so many, we'll discuss how this pursuit of advocacy and action is part of Angela's coping strategy and how you can get involved.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Instagram: https://www.instagram.com/the_hs_support_network Facebook: https://www.facebook.com/profile.php?id=100087939407891

Follow the HOST: Socials & Links: ⁠https://linktr.ee/Joelvsarthritis⁠

Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX

Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

In this episode, we learn about the importance of antimicrobial resistance (AMR) and how to combat this growing global health threat.

Vanessa Carter holds the esteemed titles of Antimicrobial Resistance Patient Survivor, Founder and Executive Director of The AMR Narrative, and Chair of the WHO Taskforce of AMR Survivors.

After a car accident required ten years of facial reconstruction, three of which were spent fighting resistant infections, such as MRSA, Osteomyelitis (bone infection) and surgical site infections, Vanessa emerged with a facial disfigurement and the challenge of learning about what it meant to live with Antimicrobial Resistance (AMR).

Hear about Vanessa's journey to advocacy and the challenges facing us with antimicrobial resistance.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Facebook: https://www.facebook.com/theAMRnarrative Instagram: https://instagram.com/theAMRnarrative Twitter/X: https://twitter.com/thramrnarrative Website: https://amrnarrative.org/

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Here is a quick update from me as we share the exciting news that The Joel Nelson Podcast is now part of the Spotify family!

Please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate making his first appearance on the Chronic Pain Talk Show.

In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Instagram: https://instagram.com/simonrstones Twitter/X: https://twitter.com/simonrstones LinkedIn: https://www.linkedin.com/in/simonstones

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.

In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease.

Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us.

Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes.

We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it.

These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s).

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Twitter/X: https://x.com/MartjStevens

Follow the HOST: Socials & Links: ⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠https://discord.com/invite/dUean4vDcX⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠YouTube ⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.

Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.

In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history.

Listen to hear a novel and alternative way to manage your pain.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays

Follow the HOST: Socials & Links: ⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠YouTube ⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.

Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.

In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history.

Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays

Follow the HOST: Socials & Links: ⁠⁠⁠⁠https://linktr.ee/Joelvsarthritis⁠⁠⁠⁠

Join our Online Peer Support Community and Discord server here: ⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠YouTube ⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray