エピソード

  • The Craziest F*ing Story We've Ever Heard | The Father Who Built a Gene Therapy
    2025/08/20

    Some people hit walls. Others knock them down, build a lab, raise millions, and call up strangers to make a genetically engineered mouse. When Terry Pirovolakis learned his young son Michael had SPG50 — a rare degenerative disease with no treatment and a grim prognosis — he didn’t spiral. He mobilized. In this jaw-dropping story of parental devotion and scientific hustle, Terry recounts how he went from IT consultant to biotech trailblazer, spearheading the development of a gene therapy from scratch. From homemade mice to confronting the Prime Minister, this episode is a whirlwind of heartbreak, grit, global collaboration, and unshakable hope. It’s not just about saving one child — it’s about lighting a path for thousands more.


    Sickboy LIVE in Calgary: https://www.showpass.com/podsummityyc2025/


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    59 分
  • He Hasn’t Peed in 17 Years | Kidney Failure
    2025/08/13

    Alex hasn’t peed in 17 years — and he’s been busy. Diagnosed at 11 with a rare kidney disease triggered by a brutal run of childhood illnesses, his life became a blur of seizures, dialysis, and a transplant that didn’t stick. Now, between 7-hour nocturnal dialysis sessions, Alex co-owns two thriving Toronto restaurants and is building a creative community from scratch. In this episode, he talks about living with three kidneys (none of them working), how trauma forged his sense of purpose, and why “burnout” takes on a whole new meaning when your body’s already pulling an all-nighter just to keep you alive.

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    49 分
  • My Guts Are Nuts | Familial Adenomatous Polyposis
    2025/08/06

    They say laughter is the best medicine - unless you're diagnosed with something that sounds like a meme.

    Mike lives with FAP, short for Familial Adenomatous Polyposis - a rare genetic disorder that guarantees colon cancer without drastic surgical intervention. In this unfiltered and laugh-out-loud conversation, Mike opens up about the brutal realities of living without a large intestine, the mental toll of life-altering surgery at 18, and the deeply personal decision to write a memoir titled A Bump in the Road. From rows of shark-like baby teeth to an ostomy bag that looked like Rudolph’s nose, Mike takes us through the gritty details of his medical journey. But what starts as a conversation about disease turns into something much bigger: a story of resilience, perspective, and finding purpose on the other side of pain. Plus, a passionate pitch for bidets, because we all know bidets are for kings.


    Check out Mike's book!

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    1 時間 4 分
  • The Pokemon Seizure Panic of ‘97 | Photosensitive Epilepsy
    2025/07/30

    Turns out, the most dangerous thing on TV in the ‘90s wasn’t violence—it was Pikachu. In December, 1997, nearly 700 kids in Japan were rushed to the hospital after watching a single episode of Pokémon. No, this isn’t an urban legend—it actually happened, and it was electrifying (lol). This week, Jer walks the fellas headfirst into the wild, true story of the Pokémon seizure panic, how Pikachu literally short-circuited a nation, and why poor ol’ Porygon got wrongfully canceled before being canceled was cool.


    We break down the science of photosensitive epilepsy, uncover how a cartoon nearly led to a nationwide media meltdown. Justice for Porygon. Blame Pikachu.


    You can watch this entire episode over on YouTube!


    Follow Sickboy on Instagram, TikTok and Discord

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    50 分
  • “I Have Down Syndrome… And Road Rage”
    2025/07/23

    Taylor Arbeau is a firecracker. A passionate photographer, musician, and former Special Olympics athlete, she also happens to live with Down syndrome — mosaic Down syndrome, to be exact (yeah, we had no clue what that was either). In this candid convo, Taylor drops truth bombs about growing up “different,” discovering self-love, and calling bullshit on assumptions people make about her. She opens up about dating, her dreams of becoming a mom, and the unexpected ways Down syndrome has shaped her art and identity.


    This episode is all heart and zero pity. It’s a celebration of difference, determination, and the power of proudly being yourself — even if you might have a tiny bit of road rage.


    Follow Taylor’s work on Instagram:

    Photography: @beausphotos3

    Music: @taylorandmusic.3

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    41 分
  • Hot Bod, Bad Hips: Terry’s Story of Chronic Pain
    2025/07/16

    Jeremie met Terry where all deep, life-altering connections begin: half-naked in a sauna, trying not to die of heat stroke. What started as a sweaty convo about testosterone turned into one of the most jaw-dropping pain stories we’ve ever heard. Terry's been battling chronic pain since the age of nine thanks to a rare hip disease that left his femur more hammerhead shark than ball-and-socket. He’s survived countless surgeries, dealt with decades of ignorance around pain management, and got hit by a car after finally getting relief from his first hip replacement. Oh yeah—he’s also the President of the Chronic Pain Association of Canada. This episode is for anyone who's ever been told they're “too young” for real pain, who’s had their suffering questioned, or who just wants to hear a badass 64-year-old tell it like it is—with a body that creaks louder than a haunted house and a sense of humour sharper than a surgical scalpel.


    Follow Sickboy on Instagram, TikTok and Discord!

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    59 分
  • Sleeping While Awake | A Life with Narcolepsy Type 1
    2025/07/09

    Falling asleep is easy—until it becomes the hardest part of your day. Recorded live in Toronto, this episode dives into the unpredictable world of narcolepsy type 1 with Heather, a traditional Chinese medicine practitioner living with both narcolepsy and cataplexy. From sleep-deprived misdiagnoses to lucid hallucinations and arms that give out mid-laugh, Heather walks us through the reality behind the disorder’s misunderstood pop culture image. She opens up about losing her spontaneity, finding community, and redefining rest, all while navigating a healthcare system still catching up. It’s funny, eye-opening, and more than a little dreamlike.

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    32 分
  • I was Bleeding to Death | A Near-Fatal Mistake
    2025/07/02

    When a hospital nurse's error leads to a life-threatening hemorrhage, Tracy's fight for survival and answers begins. This week, Tracy shares her unbelievable journey through misdiagnosis, two kidney transplants, and a near-fatal medical error that led her to become a fierce patient safety advocate. From a childhood illness that unknowingly attacked her kidneys to a shocking turn of events post-transplant, Tracy's story is a testament to resilience and the critical importance of self-advocacy in healthcare.


    You can watch this entire episode over on YouTube!


    Follow Sickboy on Instagram, TikTok and Discord.

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    1 時間 18 分