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  • Conversation | Kieran Rose
    2024/09/18

    Mark chats to the inspirational Kieran Rose. As well as being autistic/ADHD himself, Kieran has three autistic/ADHD children (11, 14 and 15) as well as an autistic wife.

    Kieran is an author, academic, trainer, consultant and all round font of knowledge on autism, so this episode contains some fascinating insights into the different communication styles between neurodivergents and neurotypicals when having a conversation.

    As well as topics such as situational mutism, hyperverbalism and monotropism, Mark and Kieran swap tales about the fact they're never able to finish a conversation without being interrupted and discuss the perils of group conversation and their very different takes on the ridiculous neurotypical habit of engaging in small talk.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Neurodive Podcast - https://soundcloud.com/neurodivepod/kieranrose

    Kieran's website - https://theautisticadvocate.com/

    Maori word for autism - https://www.bbc.co.uk/news/blogs-news-from-elsewhere-40493398

    KIERAN'S RECOMMENDATIONS FOR FURTHER READING:

    A short (and very inexhaustive) list of Autistic advocates and allies no longer with us, who have made a phenomenally constructive difference to the narratives around Autistic and Neurodivergent people, but who never get the recognition of lauded non-Autistic people: Jim Sinclair Don't mourn for us - Jim Sinclair wrote one of the pivotal texts in the reframing of Autistic experience (opens as a PDF): https://www.google.com/url?sa=t&source=web&rct=j&opi=89978449&url=https://philosophy.ucsc.edu/SinclairDontMournForUs.pdf&ved=2ahUKEwik86zq-smIAxWCWUEAHQ2NH5UQFnoECCQQAQ&usg=AOvVaw3WfDEINrbr2olYTgiO6ZKl A book about Jim: https://amzn.eu/d/3qalj4l Donna Williams Conceptualised a model of advocacy based on an inside-out approach - that observation based on your own or a normative experience can only take you so far. https://en.m.wikipedia.org/wiki/Donna_Williams She produced a massive number of books: https://uk.jkp.com/collections/author-donna-williams-pid-199891 Mel Baggs: https://en.m.wikipedia.org/wiki/Mel_Baggs An old (quality is indicative of its age, so please bear with it) video on two parts that off a deep challenge to normative assumptions around communication and experience: https://youtu.be/JnylM1hI2jc?si=IaPhwkiYn1vRmmlp Dinah Murray https://en.m.wikipedia.org/wiki/Dinah_Murray Co-creator of the theory of monotropism: https://journals.sagepub.com/doi/abs/10.1177/1362361305051398 A basic introduction: https://youtu.be/qUFDAevkd3E?si=SMiSDEoiNcDtV2eg Steve Silberman https://en.m.wikipedia.org/wiki/Steve_Silberman The author of Neurotribes, a game changing book that brought a model of different, not less into the mainstream: https://amzn.eu/d/clw0AD8

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 23 分
  • Food, laborious food | Dee McMahon
    2024/09/04

    Kicking off season 2 of Neuroshambles, Mark chats to the wonderful Dee McMahon who also has three neurodivergent children: a 16-year old boy, (diagnosed Autistic/ADHD with anxiety disorder) a 13-year old girl (diagnosed ADHD with Dyslexia/Dyscalculia) and a 9-year old boy (diagnosed Autistic with ARFID).

    Mark and Dee take a deep dive into the soul crushing nightmare of trying to feed their neurodifferent kids something remotely resembling a balanced diet. From the trauma of putting together meal plans and shopping lists, to the sense of nervous trepidation when trying to introduce their kids to new foods and the wounded pride they experience when food they've slaved away at is dismissed without even being tried.

    They also take an in-depth look at the more serious side of food issues, when they discuss Dee's personal account of her boy's recent diagnosis of ARFID (Avoidant Restrictive Food Intake Disorder).

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    ARFID - https://en.wikipedia.org/wiki/Avoidant/restrictive_food_intake_disorder

    ARFID Community Facebook Group - www.facebook.com/groups/arfid/

    mASCot website: https://www.asc-mascot.com/

    mASCot Facebook group: https://www.facebook.com/groups/221337174595596/

    To make a donation to mASCot, so they can continue their amazing work: https://www.givey.com/mascot

    Evelina Clinic, London - www.evelinalondon.nhs.uk

    Sainsbury's pasta stars - https://www.sainsburys.co.uk/gol-ui/product/sainsburys-stars-500g?

    Spruce tips - www.foragerchef.com/spruce-tips/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 34 分
  • Trying to take a bloody photo | Claire Quigley Ward
    2024/07/03

    In the final episode of this season, Mark chats with Claire Quigley Ward, who is an ADHD Coach and host of the All Aboard ADHD podcast. As well as being diagnosed ADHD herself, Claire has two neurodivergent children - a 13-year old boy (diagnosed ADHD) and an 8-year old girl (suspected ADHD with PDA traits). They discuss the absolute nightmare of trying to take a "normal" photo of our kids - from the challenges of getting them to stay still and not be distracted, to their inability to pose for the camera and the inevitable dread of seeing how they stand out for all the wrong reasons in the annual school photo.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    All Aboard ADHD podcast - https://www.allaboardadhd.com/podcast

    All Aboard ADHD coaching - https://www.allaboardadhd.com/coaching

    Apple Live Photo feature - https://support.apple.com/en-gb/104966

    Google Best Take feature - https://blog.google/products/photos/how-google-photos-best-take-works/

    SenLife App - https://mysenlife.com/

    Kate Peers - https://www.independent.co.uk/voices/adhd-children-diagnosis-special-needs-school-funding-a9163761.html

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 15 分
  • Siblings | Jess Cain
    2024/06/19

    Mark speaks to the wonderful Jess Cain - a prolific advocate for neurodivergent families and the driving force of Send Family Instincts. She is an autistic/ADHD/PDA lone parent of five children: a 15-year old boy (self-diagnosed autistic/PDA), another 15-year old boy (fostered, with SEMH needs), a 12-year old girl (self-diagnosed autistic) and twin 9-year old boys (one diagnosed autistic/ADHD/PDA and one allegedly neurotypical). In short, there is no-one better to explore this week's topic with, which is how on earth parents of neurodivergent kids juggle the competing needs of siblings. Mark and Jess share anecdotes about the difficulties they face when trying to balance the wildly different needs of all of their children, whilst somehow trying to remain positive and upbeat. From avoiding conflict, the importance of discussing everyone's needs openly, and learning how to prioritise their own needs in the midst of the mayhem.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Send Family Instincts Instagram - https://www.instagram.com/sendfamilyinstincts/

    Send Family Instincts Facebook - https://www.facebook.com/SendFamilyInstincts/

    Send Family Instincts website - https://sendfamilymagic.mykajabi.com/

    Eliza Fricker - https://www.instagram.com/elizafricker_missingthemark/

    Charlie Gray (My Neurodivergent Adventure) - https://myneurodivergentadventure.co.uk/

    Laura Kerbey (P-AST) - https://p-ast.co.uk/

    Brighton Fringe (Neurodiverse Performer Award) - https://www.brightonfringe.org/brighton-fringe-awards-ceremony/

    Sara Jane Harvey (Agony Autie) - https://www.instagram.com/agonyautie/ CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 19 分
  • Acquiring Life Skills | Lisa Galley
    2024/06/05

    Mark speaks to the magnificent Lisa Galley, who is an autism consultant and mother of three grown-up neurodivergent children - one 29-year old boy (diagnosed Autistic with a PDA profile), a 25-year old girl (suspected autistic) and a 20-year old boy (diagnosed autistic). In this fun, candid and thought-provoking episode, they discuss the challenges of helping our neurodivergent kids acquire the life skills they need to be able to live independently. As they cover the diverse range of topics under the umbrella of life skills, Lisa offers some valuable (and occasionally comforting) insights into how her kids have acquired skills, such as getting a job, navigating self care, managing money, learning to drive and, ultimately living away from home. LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Lisa Galley Instagram - https://www.instagram.com/school_run_mum_autism/

    Roblox "Find The Markers" - https://www.roblox.com/games/7896264844/Find-The-Markers-237

    Metro Bank - https://www.metrobankonline.co.uk/about-us/kids-zone/

    Toren Wolf on Learning to Drive - https://www.instagram.com/reel/C6PndheP02Z/

    Danielle Jata-Hall (PDA Parenting) - https://www.instagram.com/pdaparenting/

    Sara Jane Harvey (Agony Autie) - https://www.instagram.com/agonyautie/

    Lisa Galley's Website: https://www.lisagalley.com/ CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Threads: www.threads.net/@neuroshambles CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 33 分
  • Family Games | Dan Clark
    2024/05/22
    Mark chats with the inspirational Dan Clark, of MindJam. Dan is dad to two neurodifferent kids - one 17-year old girl (diagnosed Autistic) and a 14-year old boy (diagnosed autistic/ADHD with a PDA profile). They discuss the minefield that is playing family games with neurodivergent kids, from their desperate search to find a board game that doesn't end in full scale meltdowns and the strategies they employ to keep the peace. They also discuss the hugely beneficial role that both video games and Dungeons & Dragons can play in teaching our kids some of the skills they need to develop, in order to navigate a world teeming with neurotypicals. LINKS TO STUFF WE MENTION IN THIS EPISODE: MindJam - https://mindjam.org.uk/ Monopoly - https://en.wikipedia.org/wiki/Monopoly_(game) Fast Show Competitive Dad - https://www.youtube.com/watch?v=h2x_DI7tzNQ Mario Kart - https://store.nintendo.co.uk/en/mario-kart Beat the Parents - https://amzn.eu/d/3xTCOg8 Cranium - https://amzn.eu/d/cVedUTu Scrabble - https://amzn.eu/d/f4ngyJW Dungeon Mayhem - https://amzn.eu/d/3Z0NFr8 Throw Throw Burrito - https://amzn.eu/d/3Z0NFr8 Ocean Bingo - https://www.laurenceking.com/products/ocean-bingo Exploding Kittens - https://amzn.eu/d/933z2FH Unstable Unicorns - https://amzn.eu/d/cDnUP80 Risk - https://amzn.eu/d/dc7h30w The Dice Saloon, Brighton - https://www.dicesaloon.com/ Chase The Ace - https://www.classicgamesandpuzzles.com/Chase-the-Ace.html Zelda: Breath of the Wild - https://www.ign.com/games/the-legend-of-zelda-breath-of-the-wild Boy beats Tetris - https://www.bbc.co.uk/newsround/67902380 Fortnite - https://www.ign.com/games/fortnite Candy Crush - https://www.ign.com/games/candy-crush-saga Dungeons & Dragons - https://dnd.wizards.com/ MindJam Adventure Guild - https://mindjam.org.uk/services/adventure-guild/ BAFTA Young Game Designers - https://ygd.bafta.org/ It Takes Two - https://www.ea.com/en-gb/games/it-takes-two/about Brighton Festival Children's Parade - https://samesky.co.uk/events/childrens-parade-3/ Jump Inc Trampoline Park - https://www.jump-inc.uk/locations/lincoln/ Kellie Bright EHCP Film (BBC One Show) - https://www.bbc.co.uk/programmes/m001z8w5 CONTACT US If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/
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    1 時間 22 分
  • Sensitivity to noise | Lauren Palfrey
    2024/05/08

    Mark speaks to Lauren, neurodivergent mother of three boys (One 11-year old diagnosed Autistic/ADHD with a PDA profile), a 9-year old (suspected autistic/ADHD) and a 5-month old (too soon to tell). They delve into the topic of noise sensitivity - from extreme reactions to loud noises and meltdowns when confronted with contrasting noises, to the fascinating topic of misophonia. They swap tales of hand dryers, bonfire night, cat scarers and an unexpected cavalcade of motorcycling Santas.

    This episode is best listened to with in a quiet place, with noise cancelling headphones!

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Ear defenders - https://amzn.eu/d/fIIDess

    Misophonia - https://en.wikipedia.org/wiki/Misophonia

    Cat scarer - https://amzn.eu/d/0U0SYMw

    Santas on a bike - https://www.facebook.com/groups/santasonabike/

    Loop earplugs - https://amzn.eu/d/iNWzyws

    Lauren's noise cancelling headphones - https://groceries.asda.com/product/on-ear-headphones/asda-tech-bluetooth-noise-cancelling-headphones-black/1000370064193

    Jay's noise cancelling headphones - https://amzn.eu/d/8hs4ToC

    White noise - https://open.spotify.com/album/7KbmHEKwEhKyeZT9xuYVco?si=L5-cYE1HSIiYsaqWs83F-A

    Brown noise - https://open.spotify.com/album/0onzJRO1vDBXmXqYy60qsR?si=xgwQCc0OSC-QfID0YOlycw

    Pink noise - https://open.spotify.com/album/5w3fCjBpzyGA6tW9mSfQmr?si=bqH-u1ySQzSYkHVPNjXG1w

    UK Misophonia Support Group - https://www.facebook.com/groups/ShutUpWorld/?mibextid=K35XfP

    The Assembly - https://www.bbc.co.uk/iplayer/episodes/m001xyj5/the-assembly

    Bloke Barbers, Allestree, Derbyshire (Sara) - https://www.blokebarber.co.uk/#our-prices

    Comfa Clothing Fidget-T - https://www.comfa.co.uk/product/fidget-t/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com

    FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Reddit: www.reddit.com/r/Neuroshambles

    Threads: www.threads.net/@neuroshambles

    CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 20 分
  • The chaos of mealtimes | Liam Mullone
    2024/04/24

    Mark welcomes back guest Liam Mullone, parent of twin 13-year old boys (one diagnosed autistic and one suspected autistic/ADHD), as well as an 8-year old girl (suspected neurotypical).

    In this episode, they discuss the topic of mealtimes in their respective households - from the faff of getting them all to the dinner table in the first place, to the unmitigated disaster of their attempts to encourage their kids to sit down, use cutlery and exercise some form of table manners.

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Torbay General Hospital paediatric ward - https://www.torbayandsouthdevon.nhs.uk/services/child-health/

    McDonalds - https://www.mcdonalds.com/gb/en-gb.html

    Wetherspoons - https://www.jdwetherspoon.com/

    CONTACT US

    If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com

    FOLLOW US

    Instagram: www.instagram.com/neuroshambles

    Facebook: www.facebook.com/Neuroshambles

    Reddit: www.reddit.com/r/Neuroshambles

    Threads: www.threads.net/@neuroshambles

    CREDITS

    The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/

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    1 時間 19 分