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  • #203 - Child Life Specialists

    #203 - Child Life Specialists
    2025/06/05

    Child life specialists are specially trained to prepare children and family members for medical experiences and teach techniques to help reduce stress and anxiety. Stephanie Colaberardino, MS, CCLS, CIMI joined the podcast today to talk about how a Child Life Team can be helpful for patients with Down syndrome.

    Children's Hospital of Pittsburgh Child Life
    https://www.chp.edu/our-services/child-life/specialist-assistant

    Children's Hospital of Pittsburgh Adaptive Care Team
    https://www.chp.edu/for-parents/support-services/family-support-services

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    23 分
  • #202 - Reflections From An Adult Sibling

    #202 - Reflections From An Adult Sibling
    2025/05/22

    Author Debbie Miller joined the podcast today to discuss her life experiences with her sibling Rick. Debbie has written a memoir called Raising Ricky which can be found at:

    https://a.co/d/4ILqLyD (book and audiobook)

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    21 分
  • #201 - Shoes and Orthotics (with Dr. Sarah Mann)

    #201 - Shoes and Orthotics (with Dr. Sarah Mann)
    2025/05/08

    Dr. Sarah Mann joined the podcast today to discuss foot issues in Down syndrome and the role for supportive shoes and orthotics.

    For more information on the Mann Method Therapy Network:
    https://www.mannmethodpt.com

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    32 分
  • #200 - The Next Generation!

    #200 - The Next Generation!
    2025/04/29

    In honor of the 200th episode of the podcast, three very special guests joined the podcast today to share their memories and the impact that their Uncle Das has had on their lives.
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    12 分
  • #199 - Update on Down Syndrome Regression Disorder (DSRD)

    #199 - Update on Down Syndrome Regression Disorder (DSRD)
    2025/04/10

    Dr. Robyn Filipink, part of our Down Syndrome Center team, joined the podcast to talk about the latest information on Down Syndrome Regression Disorder.

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    36 分
  • #198 - Happy World Down Syndrome Day!

    #198 - Happy World Down Syndrome Day!
    2025/03/21

    Happy World Down Syndrome Day! Hug that special someone with Down syndrome who you love today!

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    3 分
  • #197 - National Down Syndrome Congress (NDSC)

    #197 - National Down Syndrome Congress (NDSC)
    2025/03/13

    The Executive Director of the National Down Syndrome Congress, Jim Hudson, joined the podcast to talk about the upcoming NDSC Convention and let us know about the important work that the organization is doing.

    For more information:
    NDSC
    https://www.ndsccenter.org

    NDSC Convention Registration
    https://tools.eventpower.com/reg/index/85y7aP2xy5

    NDSC Policy and Advocacy
    https://www.ndsccenter.org/political-advocacy/take-action-stay-informed/

    If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu.

    If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.

    We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    22 分
  • #196 - Advocacy 101

    #196 - Advocacy 101
    2025/02/27
    Advocating for your loved one with Down syndrome can sometimes feel overwhelming. Where do you start? How do you do it effectively? Mitch Rothholz and Julie Gerhart-Rothholz joined the podcast today to share their experiences in advocacy, including experiencing their son Evan as he has become a powerful self-advocate himself. FIND YOUR LEGISLATORCongress: https://www.congress.gov/members/find-your-member HELPFUL NATIONAL ORGANIZATIONSNDSC: https://www.ndsccenter.org/political-advocacy/take-action-stay-informed/ NDSC NDAC: https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/ndac-faq/ NDSS: https://ndss.org/ https://ndss.org/ndss-advocacy-alerts Global DS Foundation: https://www.globaldownsyndrome.org/global-advocacy-elongating-life-improving-health/ The ARC: https://p2a.co/lRPDZ5C If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
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    25 分