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  • All the bad things rolled in one episode for my 10th episode!

    All the bad things rolled in one episode for my 10th episode!
    2024/08/28
    So yea what's good without the bad?

    Hosted on Acast. See acast.com/privacy for more information.
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    19 分
  • We get to go to Disney?? what??

    We get to go to Disney?? what??
    2024/08/27

    Talking about good things happening obviously :) I mean....vacation for a medical family?


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    Hosted on Acast. See acast.com/privacy for more information.
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    16 分
  • We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF

    We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF
    2024/06/30
    On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist.

    Hosted on Acast. See acast.com/privacy for more information.
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    29 分
  • DC Leukodystrophy Research Trip Update(UBTF)

    DC Leukodystrophy Research Trip Update(UBTF)
    2024/06/27
    During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the opportunity to visit family members, including his grandparents (nono and yaya) and aunt. We also enjoyed attending a lively Greek festival together, immersing ourselves in the cultural experience. The trip was rounded off with a pleasant brunch shared with our relatives, combining both the pursuit of medical insights and cherished family moments in our nation's capital.

    Hosted on Acast. See acast.com/privacy for more information.
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    30 分
  • Sick Policies and what's coming up

    Sick Policies and what's coming up
    2024/06/03
    In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up

    Hosted on Acast. See acast.com/privacy for more information.
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    40 分
  • A Little Life Update

    A Little Life Update
    2024/05/26
    In this episode we will give a little life update. Stay tuned for some news!

    Hosted on Acast. See acast.com/privacy for more information.
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    28 分
  • Mental health along with diagnosis

    Mental health along with diagnosis
    2024/05/17
    On todays episode we dive into the mental health aspect behind a diagnosis

    Hosted on Acast. See acast.com/privacy for more information.
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    34 分
  • Genetic Testing

    Genetic Testing
    2024/05/13
    On this episode we will talk about how we came to find out about Carters two ultra rare diseases and what they are.

    Hosted on Acast. See acast.com/privacy for more information.
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    27 分