検索キーワード： 著者 "RaRo" 絵本・児童書

Hi, Welcome to the Strong and Rare parenting podcast. My name is Victoria, and I am a special needs momma of two fun loving boys. In this podcast, we will speak about all things Autism, ADHD, and Rare Diseases. This podcast will bring awareness, acceptance, and knowledge on all things we want to learn as parents raising children with special and medical needs. When you join me, I hope that you will walk away with hope and be empowered to be a driver of change for our community. Support this podcast: https://podcasters.spotify.com/pod/show/strongandrareparenting/support

Comment poser le bon diagnostic sur ces nouveau-nés et enfants atteints par des pathologies rares, des malformations de la tête, du cou et des dents ? Vers qui diriger les familles ? Comment parler de ces maladies, les comprendre et les affronter ? Les différents spécialistes de la Filière TETECOU apportent des réponses. Dans « Mots de têtes », le podcast proposé par la Filière de Santé Maladies Rares TETECOU, nous découvrons l’existence de tout un réseau spécialisé dans des pathologies rares, des malformations de la tête, du cou et des dents présentes à la naissance ...

Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The prognosis is completely unknown. They were alone. They were scared. And then they went into action. And now ...

Silent farts, squeaky farts, smelly farts, thunderous farts, and hilarious dinosaurs! Charlie is having a day full of mysterious farts at school. No one else knows who is causing all the smells. Charlie is too embarrassed to admit he is the source of the farts, until one class...when a massive fart reveals Charlie as the culprit.

Dobro došli na podcast! Ovo je naše: “Zašto Rare & Share?”: Tokom lečenja sina od retke bolesti, a posebno nakon izlečenja imali smo prilike da upoznamo sjajne ljude i čujemo vrlo inspirativne priče. Ceo jedan svet sa svojim temama. Ovde ćemo pričati sa onima koji su pokretali lavine događaja, menjali okvire, pomerali granice do tada poznatog. Želimo da razgovaramo o temama koje su važne onima koji se suočavaju sa retkim izazovima kao što su pravni i zakonski okviri, aspekat psihološke podrške, medicinska dostignuća i nove studije. Planiramo razgovarati sa ekspertima, ...