The Reverse Rett Podcast

著者： Rachael Stevenson
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  • Welcome to the Reverse Rett Podcast, sharing the stories of families living with Rett Syndrome and picking the brains of doctors and researchers working in the field. To find out more about Rett Syndrome visit: https://www.reverserett.org.uk
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あらすじ・解説

Welcome to the Reverse Rett Podcast, sharing the stories of families living with Rett Syndrome and picking the brains of doctors and researchers working in the field. To find out more about Rett Syndrome visit: https://www.reverserett.org.uk
マネジメント 経済学 身体的病い・疾患 衛生・健康的な生活
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  • Ep 27 Mark "Mavis" Reilly

    Ep 27 Mark "Mavis" Reilly
    2023/07/13

    In this episode Mark “Mavis” Reilly. Mark is a former professional footballer; he shares his story and experiences taking on some of the most gruelling physical challenges to raise awareness for Rett Syndrome and his latest challenge next year will be his most challenging so far.

    Mark’s book, “The Lives of Reilly,” delves deeper into his inspiring journey.  All profits from the book will be donated to the charity Reverse Rett.

    Buy Mark’s book here: https://namelesstownbooks.com/product/the-lives-of-reilly/

    The best way to support the podcast is by subscribing so that you get updates as soon as a new episode comes out. Thank you for listening, it also helps us get this Podcast out to a wider audience.

    https://www.reverserett.org.uk

     
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    49 分
  • Ep 26 Ross McKinney and Duncan Hughes

    Ep 26 Ross McKinney and Duncan Hughes
    2022/07/25
    The whole Rett Syndrome community were enthralled as the Five in a Row team set off from the Canary Islands last December in the Talisker Whisky Challenge.   Rowing the Atlantic is on the bucket list for most adventurers and five guys from Scotland did just that and supported Reverse Rett too. What a test of physical and mental endurance it is!   The boys were rowing in honour of Eliza who has Rett Syndrome. Her dad, Ross McKinney was part of the team and it was a real privilege to talk to Ross and the boat's skipper, Duncan Hughes about their epic adventure on the high seas.   I hope you enjoy listening to Ross and Duncan as much as I did. Having done plenty of challenges over the years I was fascinated to hear the inside story of these two North Berwick legends. I didn't dwell too much on the infamous 'Jobby Bucket' you'll be pleased to know.

    Please listen, share and if you have any comments, questions or ideas for new future podcast guests, please email me rachael@reverserett.org.uk 

    The best way to support the podcast is by subscribing so that you get updates as soon as a new episode comes out. Thank you for listening, it also helps us get this Podcast out to a wider audience.

    https://www.reverserett.org.uk
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    41 分
  • Ep 25 Gareth Warne - Pink Elephant Challenge 3

    Ep 25 Gareth Warne - Pink Elephant Challenge 3
    2022/06/22

    It's been a while but the Reverse Rett podcast is back!

    It was a pleasure to speak to the Pink Elephant man himself earlier this week as he approaches his latest crazy challenge for Reverse Rett.

    Sponsor Gareth at JUST GIVING here: https://tinyurl.com/223mbbtb

    When Gareth Warne lost his sister Reverse Rett didn't exist. In fact, back in 2005 there didn't seem to be any Rett Syndrome research on the horizon. Two years later the reversal experiments happened and the future for people with Rett Syndrome looked suddenly brighter.

    Sadly, this new hope came too late for Angharad who passed away suddenly aged 17.

    Gareth discovered Reverse Rett in 2013 and has been doing challenges ever since. Each one has been more brutal than the one before but Gareth keeps taking them on inspired by the memory of his younger sister, Angharad.

    Gareth talks about Angharad, what drives him on to keep on pushing himself through the pain barrier and the reason behind the Pink Elephant.

    Please listen, share and if you have any comments, questions or ideas for new future podcast guests, please email me rachael@reverserett.org.uk

    The best way to support the podcast is by subscribing so that you get updates as soon as a new episode comes out. Thank you for listening!

    Reverse Rett website: https://www.reverserett.org.uk
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    32 分

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