『The Rare Disease Podcast』のカバーアート

The Rare Disease Podcast

The Rare Disease Podcast

著者： Medics For Rare Disease
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このコンテンツについて

3.5 million people in the UK live with a rare disease, so while each disease is individually rare, together rare diseases are common. Hear interviews with patients, clinicians, advocates, students and researchers focusing on rare disease in clinical medicine.


This podcast is brought to you by Medics for Rare Disease. Podcast distributors create their own transcripts and M4RD doesn’t take responsibility for them

© 2025 The Rare Disease Podcast 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Why Is Being Rare Still a Struggle for Justice?

    Why Is Being Rare Still a Struggle for Justice?
    2025/07/17

    Let us know what you think of this episode! We read every comment we receive.

    For this episode of the podcast Lucy speaks with our new Research Project Manager Megan all about the RDI Lancet Commission on rare disease.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
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    52 分
  • Hidden Clues at Birth: Are PAGS the Missing Link?

    Hidden Clues at Birth: Are PAGS the Missing Link?
    2025/07/10

    Let us know what you think of this episode! We read every comment we receive.

    For this week's episode of the podcast, Lucy talks all about the Role of PAG's in New Born Screening which includes a talk that includes all of the ways that patient advocacy groups have been involved in the UK and globally.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
    続きを読む 一部表示
    50 分
  • We Thought It Was Just Seizures

    We Thought It Was Just Seizures
    2025/07/03

    Let us know what you think of this episode! We read every comment we receive.

    For this week's episode of the podcast, Lucy chats to Abbie and her Father Steve.

    Whilst at primary school, Abbie was diagnosed with a very rare brain tumour during the COVID pandemic. Abbie shares her experiences along with Steve about her tumour.

    Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

    M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

    M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare
    続きを読む 一部表示
    46 分

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