Jess Ronne was brave enough to ask the question: what happens when the cute little boy with profound disabilities ... grows up? I found Jess on her podcast, Coffee with Caregivers, when she and her husband were exploring this question in regards to their teenage son, Lucas, who has profound autism. As if that wasn't enough, they were also raising seven other kids. Through a lot of hard work and prayer, they were able to create Hope Farm, a group home for Lucas and three other young adults, where they have 24-hour care, but also the independence that they need. Jess shares honestly about how Lucas's disability was affecting her marriage, her home, and her other children and how they can now breathe a little easier and truly enjoy their time with Lucas. Jess is a visionary and a strong advocate for respite for caregivers. She is an author, a podcast host, founder of a non-profit, and has been involved in two documentaries - and remember, she has done all this while having eight children! I am so thankful she agreed to talk today about this very important topic that is so often avoided. I encourage you all to check out her amazing content and resources below!

IG @jessplusthemess, FB at Jessplusthemess

www.jessplusthemess.com (Click on "Books" to learn more and order all 4 books!)

www.thelucasproject.org

Coffee with Caregivers Podcast: https://anchor.fm/jess-ronneUnseen documentary: https://caregiverdoc.com/

When Christin was 32 weeks pregnant, she was planning to head to the airport with her toddler, 2 dogs, and 20 bags that were packed - she had been living in Japan for three years for her husband's military service and she was preparing to return to the US to get settled in before her second baby arrived. Suddenly, her plans changed and next thing she knew, she was being transferred to a different city in Japan where doctors and nurses did not speak her language, trying to understand the medical emergency that was happening as her infant daughter inside her was losing blood. Christin shares what it was like to be in a medical emergency in a different county being unable to understand the information while doctors had to work together to decide what to do to save her baby's life....and Christin's, too. In addition to being terrified about the rare medical condition, several cultural differences affected her delivery and recovery as well. This birth story is a wild ride, but hang in there until the very end to find out how it all turns out!

I had been looking for a mama to a child with Tourette Sydrome for a while, and I was so excited to find Katie Reall who is a mom to four kids, TWO of whom have TS. She shares about her journey with her oldest son, Sam, who is now a young adult, and then her second journey with her daughter, Annie, who has some similarities to Sam in her Tourette journey, but who also presents very differently. Katie and her family first educated themselves, then others locally such as teachers and classmates, and they now advocate for individuals with TS throughout their state and even the nation, working at camps and educating others. I learned so much from this interview not just about Tourette Syndrome, but also about how this family bonded together to fill their lives with support, laughter, and purpose.

Find out more about the camps Katie mentions here:

https://www.camptwitchandshout.org/

https://www.tourettecampusa.com/

Resources:

Tourette Association: https://tourette.org/https://www.instagram.com/touretteassociation/

Find Katie on IG https://www.instagram.com/gigispetals/

Donate here:https://secure.everyaction.com/_UenJReuik-CA5GrR0zqIg2