• Special Books by Special Kids (SBSK)

  • 著者: Chris Ulmer
  • ポッドキャスト

Special Books by Special Kids (SBSK)

著者: Chris Ulmer
  • サマリー

  • Interviews that are intended to create a more inclusive world. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. This multi-media movement supports the acceptance and inclusion of all members of the neurodiverse/disability community regardless of diagnosis, age, race, religion, income, sexual orientation, gender or gender expression.
    Chris Ulmer
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あらすじ・解説

Interviews that are intended to create a more inclusive world. Originally intended to be a book written by my students, SBSK soon grew to be video interviews of disabled people of all ages and diagnoses. This multi-media movement supports the acceptance and inclusion of all members of the neurodiverse/disability community regardless of diagnosis, age, race, religion, income, sexual orientation, gender or gender expression.
Chris Ulmer
エピソード
  • Born Without a Pivotal Part of the Brain (Agenesis of the Corpus Callosum)
    2024/10/25
    Silas was born without the part of the brain that connects the two hemispheres, a condition known as agenesis of the corpus callosum. As a result, he is unable to walk or talk and requires constant care. Silas' family wants others to know that he is worthy of love and friendship.
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    17 分
  • Siblings with Childhood Alzheimer's (Roman and Stella)
    2024/10/24
    Roman was diagnosed with childhood Alzheimer's (ASMD) a few days after his parents learned they were pregnant with Stella. This diagnosis came with the heavy knowledge that Stella had a 25% chance of inheriting the same life-altering condition. Stella was later diagnosed with this fatal disease. As both siblings face a devastating regression, their parents are focused on living in the moment and providing Roman and Stella with joyful memories while they all battle this rare disease together.
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    23 分
  • A Kid Who's Always Hungry (A Side Effect of Brain Surgery)
    2024/10/23
    Wyatt was diagnosed with a brain tumor known as a hypothalamic hamartoma. After having surgery to remove this tumor, he is no longer able to control his appetite. Even a full meal will not satisfy his hunger because the part of the brain that regulates appetite was impacted during surgery. Doctors have even referred to this as "surgically induced Prader-Willi". Wyatt and his family want others to know that he is doing his best and they are proud of him.
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    17 分

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