In this episode of Post-Exertional Mayonnaise, Dov Zeller, Litsa Dremousis and Daniel Moore discuss the challenges of living with ME and chronic illness, focusing on the fluctuations in health and the emotional costs associated with these ups and downs. They share personal experiences, listener contributions, and coping strategies, emphasizing the importance of community support and understanding in navigating these challenges. In this conversation, the speakers discuss the complexities of living with chronic illnesses such as ME and long COVID. They explore the emotional challenges, the importance of self-compassion, and the need for community support. The conversation also touches on recent research breakthroughs and the ongoing struggles faced by patients, including safety concerns in the current socio-political climate. Ultimately, they emphasize the significance of finding joy and connection amidst adversity.#myalgicencephalomyelitis #chronicillness #mecfs www.pempod.compempodcast23@gmail.com

In this episode of Post-Exertional Mayonnaise, the hosts, Daniel Moore, Litsa Dremousis and Dov Zeller delve into the intersection of chronic illness and toxic religion, exploring the emotional and spiritual harm that can arise from religious beliefs. They discuss Kate Bowler's book, 'Everything Happens for a Reason and Other Lies I've Loved,' which addresses the imposition of reasons for illness by others. The conversation highlights the burden of blame often placed on individuals with chronic illnesses and the impact of generational curses and forgiveness narratives within religious contexts.

In this conversation, the speakers delve into the complexities of illness, spirituality, and societal attitudes towards disability. They explore the concept of generational curses, the role of prayer and support, and the impact of spiritual beliefs on health. The discussion highlights the challenges faced by individuals with chronic illnesses, the misunderstanding and cruelty they often encounter, and the societal tendency to blame individuals for their health conditions. Ultimately, the conversation emphasizes the importance of acceptance, understanding, and community care in navigating illness. In this conversation, the speakers explore the complex interplay between disability, healthcare and personal beliefs. They discuss societal perceptions of disability, the inequities in healthcare systems, and the impact of toxic positivity on those facing chronic illness. #myalgicencephalomyelitis #Spiritualabuse#toxicreligion#religioustrauma If you'd be interested in a closed facebook group to discuss the intersection of toxic spirituality chronic illness, please let us know.pempodcast23@gmail.comwww.pempod.comSupport the podcast!https://www.patreon.com/c/Pempod

In this episode, Daniel Moore, Litsa Dremousis and Dov Zeller discuss the complexities of living with ME and the role of social media in building community and relationships. They explore the impact of isolation, the significance of online friendships, and the challenges of navigating medical misinformation. The conversation emphasizes the importance of finding balance in online interactions and the comfort found in shared experiences within the ME community.Tell us your 'bring a thing'! Is there anything that has brought you joy recently?https://pempod.com/pempodcast23@gmail.com

In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore, Litsa Dremousis, and Dov Zeller discuss the challenges of living with ME and chronic illness, the impact of recent losses in the community, and the importance of navigating personal and political changes. They reflect on coping mechanisms, the significance of community support, and the role of media in providing comfort. The conversation emphasizes the need for understanding and empathy in a world that often overlooks the realities of chronic illness. Follow us on Bluesky! Dov: @dovsz.bsky.social Litsa: @litsadremousis.bsky.social Daniel: @talmandaniel.bsky.social Book mentioned by Litsa: https://en.wikipedia.org/wiki/Parable_of_the_Sower_(novel) Episode with Judith: https://www.youtube.com/watch?v=hNVl69RivF4&t=1238s Sammy Lincroft, ME and more account: https://www.instagram.com/m.e_and_more/ Contact us: pempodcast23@gmail.com Website: https://www.pempod.com/ Patreon: https://www.patreon.com/Pempod

In this episode of the Post-Exertional Mayonnaise podcast, host Daniel Moore speaks with Merel van der Noop, the music director of the Long COVID Choir and Long COVID Kids Choir. They discuss Merel's personal journey with Long COVID, the challenges of navigating healthcare, and the transformative power of music in coping with chronic illness. The conversation highlights the importance of community, support, and creative expression in the healing process, as well as the unique experiences of children with Long COVID. Merel shares insights into the formation of the Long COVID Choir, the activities they engage in, and the significance of fostering connections among participants. The choir is open to anyone with long term chronic conditions. Long covid choir: https://www.longcovid.org/support/long-covid-choir A home within our heart recording: https://youtu.be/xzyLJAyL8Fs?si=2Q6feGtn4IMFLvcd Contact us: www.pempod.com Pempodcast23@gmail.com

In this episode of Post-Exertional Mayonnaise, hosts Dov and Daniel explore the themes of social isolation and sensory overload experienced by those living with ME and chronic illness. They discuss the impact of these conditions on social lives, the challenges of navigating social interactions, and the absurdity of medical care. The conversation highlights the emotional toll of social deconditioning, the importance of community, and the joy found in mundane social interactions. Through humour and shared experiences, they reflect on the complexities of maintaining connections in a world that often feels distant and overwhelming.#chronicillness #myalgicencephalomyelitis #socialisolation Contact us: pempodcast23@gmail.com https://www.pempod.com/

In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore speaks with Lisanne Jacobs, a songwriter and chronic illness advocate, about her journey with ME and the role of creativity in coping with chronic illness. Lisanne shares her personal story, including her diagnosis, struggles with healthcare, and the importance of music as a form of expression and healing. They discuss the challenges of navigating the healthcare system, the impact of chronic illness on daily life, and the hope that can be found in small improvements. Lisanne also reflects on her songwriting process and the influence of other artists on her work, emphasising the importance of connection and representation in the chronic illness community. Homeostasis lyrics: It gets harder every fall When it rains through bedroom walls, it pours ‘til doctor’s don’t care anymore You fake the art of getting by Weary hearts, blurry sights set on elusive finish lines We’re a long, long way from homeostasis There’s no time to waste, but we’re caught in a loop Oh we long for a taste of something good Crossing off each day we’ve made it through And it’s ever so still in the waiting room Hmmmmm “When you get stuck, there’s a window” says the lucky one on the other side (But) all we do is try “Where there’s a maze, there’s an exit” Oh it’s a race against bitter bones to find it before all of our youth runs dry We’re a long, long way from homeostasis When all else fails, time could move us through When the green turns grey, oh we’ll get creative Painting old vases ‘til we’ve paid our dues And it’s ever so dark but we could make it through one more year in this waiting Roooooooom Here, take my hand, let’s err on the side of hope My dear, take the stand and swear that you won’t let go Oh the least we have is not being (the least bit) alone... ...while breathing the art of getting by Weary hearts, blurry sights set on elusive finish lines We’re a long, long way from homeostasis When everything aches, love could move us through When the green turns grey, oh we’ll get creative I’ll sing your praises ’til you’re singing too And it’s ever so dull but we could paint it blue Every inch of this waiting room Oh it’s ever so still but love will lead us through one more day in this waiting room Lisanne's music can be found on Instagram: https://www.instagram.com/lisannejacobsmusic?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== Daniel's track: quit button https://youtu.be/0w31Z4bFqQ0?si=UWREvOxtCf0X_NWz Turnto link: https://www.turnto.ai/?utm_source=link&utm_medium=share&utm_campaign=pempodcast Contact us: https://www.pempod.com/ pempodcast23@gmail.com

In this episode, our third and final part of our chronic illness and cancer mini-series, Oonagh Carr talks to Daniel about her profound journey living with long COVID and a subsequent breast cancer diagnosis. She discusses the drastic changes in her life, the challenges of navigating the healthcare system, and the importance of community support. Oonagh emphasizes the need for better understanding and research into long COVID, as well as the emotional toll of living with chronic illness. Through her story, she highlights the resilience required to cope with these overlapping health challenges and the significance of advocating for oneself in medical settings. Contact us: pempodcast23@gmail.com https://www.pempod.com/