PEP Talks ISPEP

著者: Emma Sutcliffe
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  • PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
    Copyright 2024 Emma Sutcliffe
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あらすじ・解説

PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.
Copyright 2024 Emma Sutcliffe
エピソード
  • Patient Engagment: Driven by empathy, fuelled by business. How ISPEP supports all patient professionals
    2024/12/20

    Pep Talks, hosted by Emma Sutcliffe, is a podcast series sponsored by the International Society for Patient Engagement Professionals (ISPEP). In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPE, about her new role as Chief Patient Officer.

    Emma shares her journey from a medical biochemist to a patient engagement professional, emphasizing the importance of empathy and strategic business practices in the pharmaceutical industry.

    The discussion highlights the challenges and responsibilities of patient engagement professionals, the need for professionalization, and the evolving role of patient advocacy. Emma envisions a future where new leaders emerge within the ISPE community, fostering growth and development in patient engagement.

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    25 分
  • Onions, pop culture & sea-gazing: How being an 'outsider' brings emotional resonance to the science of patient engagement
    2024/12/06

    In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication.

    He shares insights on his role in bridging the gap between patients and the pharmaceutical industry, highlighting the importance of understanding patient needs and motivations. Rasmus also talks about the significance of change management in the pharma industry and the necessity of presenting a business rationale for patient engagement.

    The conversation underscores the value of diverse perspectives and the impact of effective communication in fostering patient participation in clinical research.

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    21 分
  • Strive4Five with Steve: Core skill sets for honest and empathic patient advocacy
    2024/11/06

    In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psychosocial model of care. Steve emphasizes the power of positivity and the importance of support systems, including therapy and pets.

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    22 分

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