『Lucas: Epidermolysis Bullosa Simplex』のカバーアート

Lucas: Epidermolysis Bullosa Simplex

Lucas: Epidermolysis Bullosa Simplex

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Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.


Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.


In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering.


He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability.


The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.


#Epidermolysis Bullosa

#disability awareness

#chronic pain

#personal experiences

#skin conditions

#empathy

#healthcare

#living with disabilities

#advice for patients

#rare diseases



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