In this powerful episode, Jocelyn Leworthy, a child life specialist and advocate, shares her personal journey living with albinism and visual impairment. Through her experiences, she highlights the everyday challenges of navigating a world that wasn't designed with universal accessibility in mind. From concert venues to shopping experiences, Jocelyn discusses both physical and attitudinal barriers that people with disabilities face, while offering practical suggestions for creating more inclusive spaces and services. Her story exemplifies the importance of moving beyond basic accommodation to truly understanding and implementing universal design principles in all aspects of society.

Connect with Jocelyn at https://www.instagram.com/childlifejocelyn/

Timestamps

[00:00:00] - Opening thoughts on embracing learning and individual experiences

[00:01:00] - Introduction and Martin Luther King Jr. quote on humanity

[00:02:00] - Jocelyn introduces her condition: albinism and visual impairment

[00:04:00] - Discussion of living in a world not designed for accessibility

[00:07:00] - Examples of everyday barriers (signage, menus, shopping)

[00:13:00] - Discussion of Universal Design for Learning principles

[00:15:00] - Challenges with attitudinal barriers and validation

[00:20:00] - Employment considerations and disclosure

[00:27:00] - Recommendations for businesses on improving accessibility

[00:29:00] - Taylor Swift concert accessibility experience

[00:34:00] - Challenges with Ticketmaster and venue accessibility

[00:42:00] - Impact of uninformed staff responses to accessibility needs

[00:47:00] - Suggestions for retail accessibility improvements

[00:54:00] - Importance of open dialogue and willingness to learn

[00:57:00] - Closing thoughts on universal inclusion

Key Takeaways

1. Universal accessibility is not just about physical accommodations but also about addressing attitudinal barriers and misconceptions.
2. Simple solutions often exist for improving accessibility (like digital menus, product description books, QR codes) but aren't widely implemented.
3. The burden of advocacy often falls on individuals with disabilities, leading to exhaustion and frustration.
4. Staff training should focus less on becoming "experts" and more on being open to learning from individuals about their specific needs.
5. Universal design benefits everyone, not just those with specific disabilities or impairments.
6. Businesses may be losing customer base by not considering accessibility in their services and products.

Connect with Katie Begley!

https://www.heartinhome.ca/

https://www.instagram.com/heartinhomeliving/

heartinhomepodcast@gmail.com