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Amidst the challenges of her daughter Dalia's rare condition, MERRF Syndrome, this week's guest, Jessica Fein, also faced the crushing blows of losing her mother, father, and both sisters during the same trying period. Her story is a tapestry of sorrow and strength, woven with threads of love and loss that resonate deeply with the human experience.

The uncertainties surrounding her daughter's diagnosis added layers of complexity to Dalia's health, making it a daunting task to predict her future. Jessica's unwavering determination to advocate for her daughter, alongside the weight of her losses, paints a poignant picture of courage in the face of adversity.

As Dalia's health declined, necessitating intensive care and tough decisions, Jessica grappled with the harsh reality that not everything could be fixed. Her transition from seeking a cure to enhancing Dahlia's quality of life reflects a mother's boundless love and commitment to her child's well-being.

Throughout the episode, Jessica's reflections on witnessing her loved ones' pain and her journey through grief and healing resonate with a profound sense of vulnerability and resilience. Her ability to find glimmers of joy and connection (with herself, friends, and spouse) amidst the darkness speaks volumes about the human spirit's capacity for hope and strength amid hardship.

Jessica's story reminds us of the intricate dance between love and loss, woven together with threads of grace and grit. Her journey embodies the transformative power of facing life's most challenging trials with unwavering love, compassion, and a resilient spirit that shines through even in the darkest times.

RESOURCES:

• Book, Breath Taking: A Memoir of Family, Dreams, and Broken Genes
• MitoAction

CONNECT:

• Website
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• LinkedIn

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NEED HELP?

• National Suicide Prevention Lifeline: 1-800-273-8255
• Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor

If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.

CONNECT WITH VICTORIA:

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Support the show

This episode is sponsored by Do Grief Differently™️, my twelve-week, one-on-one, in-person/online program for grievers who have suffered any type of loss to feel better. Click here to learn new tools, grief education, and the only evidence-based method for moving beyond the pain of grief.

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