Drs. James Grogan and Andrew Geronimo of @PennStateHealth join the ALS United Mid-Atlantic GOALS Podcast to discuss advances in Brain Computer Interface and other communication tools and how they benefit people with ALS. In this podcast, they discuss the nature of communication, how BCI works, measuring BCI success, and lessons from technology such as video games.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Paul Melmeyer from ⁨@MDA⁩ joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaborating on ALS Advocacy, recent advocacy successes like the ALS Disability Insurance Access Act, reauthorization of ACT for ALS, and protecting Medicaid.

Learn more about MDA's work on Medicaid at: https://www.mda.org/press-releases/proposed-medicaid-and-health-coverage-cuts-raise-substantial-concern-for-the-neuromuscular-community

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Laura Ness with Hearts for Home Care is the featured guest on the latest ALS United Mid-Atlantic GOALS Podcast. Topics include advocating for home care access, how people with ALS benefit from home care, and how home care is a smart choice for state budgets.

Learn more about Hearts for Home Care at www.heartsforhomecare.com

Learn more about ALS, our programs and services, and how to support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

Daniela Zarnescu, PhD, is the Associate Dean for Graduate Education and Postdoctoral Training at Penn State College of Medicine. She joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work in ALS research, how people can enroll in ongoing studies, the advances in science during her career, and what gives her hope for the ALS cause.

Learn more about Dr. Zarnescu and her team at: https://sites.psu.edu/zarnesculab/meet-the-team/

Learn more about ALS, our programs and services, and how to take action to support ALS United Mid-Atlantic at www.alsmidatlantic.org

ALS United Mid-Atlantic nurse Maureen Reid, RN, BSN, joins the GOALS Podcast to discuss her personal history with ALS, connecting with ALS patients and families, ALS advocacy, and the strong reputation and research work at Penn State Health Hershey Medical Center.

Learn more about ALS, our programs and services, and how to support our mission at www.alsmidatlantic.org

Janie Dalrymple joins The ALS United Mid-Atlantic GOALS Podcast for an important topic on ALS and Mechanical Ventilation. In this episode, Janie highlights the questions to ask before making a decision on mechanical ventilation, costs considerations, additional care needs, and long-term planning.

To learn more about ALS United Mid-Atlantic and how to support our mission, visit www.alsmidatlantic.org

To learn more about Janie and the work of ALS Arizona, visit www.alsaz.org

#ALS #mechanicalventilation #alsunited #longtermcare #trending #healthcare

Josh Hunter has a form of ALS called Juvenile ALS. Over the past year, Josh has been active in ALS awareness, advocacy, and research. In this ALS United Mid-Atlantic GOALS Podcast, Josh talks about a special week in review and shares his experience with his daughter Phoenix at the AEW Dynasty show and the Help and Hope Symposium. Other topics include mental health, caregiving, and an upcoming event on June 14th with Ric Flair at Harrah's Philadelphia Casino in Chester, PA. Join our ALS mission a www.alsmidatlantic.org

#ALS #alsunited #alsadvocacy #ALSresearch #AEW #pennsylvania

Diane Reibel, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her work on ALS and Mindfulness. Topics include the sciences behind mindfulness, reducing stress, and programs to benefit people with ALS and their caregivers. To learn more about ALS and our programs, visit www.alsmidatlantic.org

Diane Reibel, PhD, is the director of the Myrna Brind Center for Mindfulness. Learn more about her work at https://www.jeffersonhealth.org/conditions-and-treatments/mindfulness-based-stress-reduction/mindfulness

#ALS #ALSUnited #Mindfulness #stress #caregiving #Podcast