Empowered EDS

著者: Lauren Prince and Jason Cole
  • サマリー

  • Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it’s more than just a diagnosis—it’s a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder. Lauren intimately understands the personal challenges of EDS, having spent decades navigating symptoms without answers and struggling to understand her own body. Jason, a specialist in hypermobility and EDS care, brings deep professional expertise and a passion for helping patients better understand how to care for themselves. Together, they blend personal experience with in-depth training and evidence-based insights to offer you a new perspective on living well with EDS! Each episode of Empowered EDS explores holistic, sustainable approaches to chronic illness, from lifestyle medicine and pain management to mental health support and community-building. We’ll cover topics like finding the right EDS treatment options, coping with chronic pain and fatigue, understanding the EDS diagnosis process, and creating a personalized path to resilience. Expect to hear from medical experts, community members, and advocates who share tips, strategies, and heartfelt stories for thriving with EDS. Empowered EDS isn’t just about managing symptoms—it’s about empowering you to take control of your health and connect with others who understand. Join us on this journey toward greater well-being, because no one should have to face EDS alone. Subscribe to Empowered EDS for actionable insights, uplifting stories, and a supportive community dedicated to helping you live your best life with EDS!
    2024
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あらすじ・解説

Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it’s more than just a diagnosis—it’s a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder. Lauren intimately understands the personal challenges of EDS, having spent decades navigating symptoms without answers and struggling to understand her own body. Jason, a specialist in hypermobility and EDS care, brings deep professional expertise and a passion for helping patients better understand how to care for themselves. Together, they blend personal experience with in-depth training and evidence-based insights to offer you a new perspective on living well with EDS! Each episode of Empowered EDS explores holistic, sustainable approaches to chronic illness, from lifestyle medicine and pain management to mental health support and community-building. We’ll cover topics like finding the right EDS treatment options, coping with chronic pain and fatigue, understanding the EDS diagnosis process, and creating a personalized path to resilience. Expect to hear from medical experts, community members, and advocates who share tips, strategies, and heartfelt stories for thriving with EDS. Empowered EDS isn’t just about managing symptoms—it’s about empowering you to take control of your health and connect with others who understand. Join us on this journey toward greater well-being, because no one should have to face EDS alone. Subscribe to Empowered EDS for actionable insights, uplifting stories, and a supportive community dedicated to helping you live your best life with EDS!
2024
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  • Navigating Stress and Self-Care with EDS
    2025/04/03

    In this episode of Empowered EDS, Lauren Prince explores the deeply personal and often overlooked connection between stress, chronic illness, and healing. Through the lens of lifestyle medicine and mental health, Lauren dives into the unique stressors faced by those living with Ehlers-Danlos Syndrome (EDS) and chronic illness.

    Together, we unpack how chronic stress impacts the body on a physiological level—fueling pain, inflammation, and emotional fatigue. Lauren shares how cultivating awareness, supportive relationships, and individualized self-care strategies can help shift how we carry and respond to stress.

    This conversation is a reminder that resilience isn't about pushing through—it’s about honoring what you need. Tune in for compassionate insights on managing stress, reframing resilience, and embracing the full spectrum of your emotional experience.

    Key Takeaways:

    • Stress management is foundational in lifestyle medicine, especially for EDS and chronic conditions.

    • Individuals with EDS often face invisible and compounding stressors that deserve validation.

    • Chronic stress isn’t just emotional—it creates real physiological responses that can increase pain and inflammation.

    • Awareness is the first step in transforming your relationship with stress.

    • Self-care is not one-size-fits-all—your body knows what it needs.

    • Meaningful, supportive relationships can act as a buffer against daily stress.

    • Even “positive” stress can take a toll on your body.

    • You don’t need to earn rest or wellness through resilience.

    • Happiness isn’t a choice—it’s a journey rooted in compassion, context, and connection.

    Sound Bites:

    “It’s not just in your head.”
    “We shouldn’t just squash it all down.”
    “It’s okay to feel every emotion.”

    Chapters:
    02:56 – The Impact of Chronic Illness on Stress
    09:03 – The Complexity of Chronic Pain
    14:54 – Building Positive Relationships for Stress Management
    20:38 – Navigating Relationships with Chronic Illness
    29:37 – The Burden of Resilience
    37:43 – Choosing Happiness vs. Reality
    42:50 – Introduction to Empowered EDS
    42:55 – Health and Wellness Insights

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    43 分
  • The Power of Nutrition in EDS & Chronic Illness
    2025/03/19

    Empowered EDS Podcast
    🎙️ Episode Title: The Power of Nutrition in EDS & Chronic Illness

    Episode Summary

    In this episode, Lauren Prince, Jason Cole, and Jess Toomey dive into the transformative role of nutrition in managing Ehlers-Danlos Syndrome (EDS) and other chronic conditions. They introduce the Total Gut Reset program, explaining how elimination diets and personalized nutrition can help uncover food triggers and improve gut health.

    This conversation highlights the interconnectedness of diet, mental well-being, and lifestyle, reinforcing the importance of listening to your body’s cues. The hosts discuss food preparation techniques, the role of collaborative care, and why teaching children about nutrition is key to lifelong health.

    The episode wraps up with an inspiring call to prioritize self-care and embrace the ongoing journey of understanding your unique health needs.

    Key Takeaways

    Nutrition is foundational—it’s often the first focus in EDS care.
    Elimination diets can reveal food triggers and promote gut health.
    ✅ The Total Gut Reset program offers tailored nutrition support.
    How you prepare food matters—it can impact gut health and symptoms.
    Listening to your body is key to managing nutrition effectively.
    Rest and recovery are just as vital as diet in overall wellness.
    Educating children about nutrition fosters long-term health.
    Collaborative care leads to better outcomes in chronic illness management.
    Personalized nutrition is essential—what works for one person may not work for another.
    Self-care is a necessity, not a luxury.

    Sound Bites

    🎧 "Listen to your body's cues."
    🎧 "Food is medicine."
    🎧 "Self-care is not selfish."

    Episode Chapters

    ⏱️ 00:00 | Introduction to Nutrition and Chronic Illness
    ⏱️ 00:52 | The Total Gut Reset Program
    ⏱️ 05:42 | Understanding Elimination Diets
    ⏱️ 10:47 | The Role of Food Preparation
    ⏱️ 15:29 | Listening to Your Body’s Cues
    ⏱️ 20:06 | Nutrition as Medicine
    ⏱️ 25:25 | Demystifying Dietary Changes
    ⏱️ 34:57 | Understanding Gut Health and Nutrition
    ⏱️ 42:47 | Collaborative Care in Health and Nutrition
    ⏱️ 48:19 | The Individuality of Nutrition and Health
    ⏱️ 53:42 | Navigating Hormonal Health
    ⏱️ 53:43 | The Impact of Early Health Decisions
    ⏱️ 01:02:53 | The Importance of Rest and Self-Care
    ⏱️ 01:09:09 | Introduction to Empowered EDS
    ⏱️ 01:09:13 | Health and Wellness Insights

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    1 時間 10 分
  • Physical Activity for Chronic Illness Management
    2025/03/04

    Managing Ehlers-Danlos Syndrome (EDS) and other chronic conditions comes with unique challenges, especially when it comes to staying active while avoiding pain, joint instability, and fatigue. But movement is essential—it strengthens muscles to stabilize joints, improves circulation, and boosts overall well-being.

    In this episode of Empowered EDS, Lauren and Jason, break down the role of physical activity in chronic illness management, offering practical, evidence-based strategies for incorporating safe, effective movement into daily life. Whether you're dealing with limited mobility, chronic pain, or fatigue, this episode provides adaptable exercise recommendations that work with your body, not against it.

    Show Notes:

    Physical activity is an essential part of managing chronic conditions like Ehlers-Danlos Syndrome (EDS), but for many, movement can feel overwhelming due to chronic pain, joint instability, and fatigue. In this episode of Empowered EDS, Lauren and Jason, explore how to incorporate movement in a way that supports, rather than stresses, the body.

    The discussion explores the importance of finding pain-free movement, the mental health benefits of staying active, and how to integrate exercise with other lifestyle pillars like nutrition and sleep. We also highlight the role of proprioception in reducing dislocations and improving stability, and share practical strategies for adapting movement to different ability levels.

    📌 What You’ll Learn in This Episode:
    ✔️ Why movement matters for chronic illness management
    ✔️ How to find safe, pain-free movement that supports joint stability
    ✔️ The mental health benefits of physical activity for EDS
    ✔️ Proprioception—what it is and how it helps prevent dislocations
    ✔️ How to adapt movement routines during flare-ups without losing progress
    ✔️ The importance of an individualized approach—why tailored exercise programs work best
    ✔️ How to create simple, sustainable movement habits that fit into daily life

    Key Takeaways:

    Physical activity is essential for managing chronic conditions, but it must be adapted to the individual.
    Finding pain-free movement is crucial—never push through pain.
    Gentle engagement is still beneficial, even during flare-ups.
    Mental health improves with regular physical activity.
    Movement works best when integrated with nutrition, sleep, and stress management.
    Proprioception training helps improve body awareness and prevent dislocations.
    Small movements make a big difference—starting simple increases long-term consistency.
    Adapting movement routines during flare-ups helps maintain progress without causing setbacks.

    Chapters & Timestamps:

    🔹 00:00 – The Importance of Physical Activity in Chronic Illness Management
    🔹 07:51 – The Mental Health Benefits of Movement
    🔹 11:34 – Understanding Proprioception & Its Role in EDS Management
    🔹 17:22 – How Exercise Can Help Manage Dislocations & Subluxations
    🔹 20:18 – Individualized Assessment & Tailored Movement Plans
    🔹 23:34 – Creating Sustainable Routines for Physical Activity
    🔹 27:50 – Adapting Movement During Flare-Ups
    🔹 32:33 – Final Thoughts & Encouragement to Start Small

    Sound Bites:

    🎙️ "Never push through pain."
    🎙️ "Keep it simple."
    🎙️ "Try something small this week."

    Join the Conversation!

    🔔 Next Episode Preview:
    Next week, we dive into nutrition for EDS, discussing how the right foods can support connective tissue health and inflammation management. Don’t miss it!

    📢 If you found this episode valuable, please subscribe, leave a review, and share it with someone who needs this information!

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    33 分

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